Tuesday, February 21, 2017
Home
Today Parker started his day with a 2 hour chemo treatment with nurses taking vitals every 15 minutes. We were hoping today would be as uneventful as his first treatment - and it was! Lots of preparation took place to get him discharged- family care meeting, pharmacy meeting, getting his port ready, last labs, pills, nutritionist meeting, RN schedule review and a couple more signatures on his cast and we were out!
We are home, like we never left and it is all completely overwhelming and surreal to me. I should feel ecstatic that we are home - and I am, but there is a part of me that is thinking this was too simple. Now I have nothing to compare this whole experience to but I just can't comprehend that I know have a son that was diagnosed with leukemia 5 days ago and he is already returning to school. His counts are great, low risk for infection and he is in great spirits. I will take the good days and pray that he has more like these than not. I did not expect this to be our current situation but reality is - this IS our current situation. I will struggle every day trying to come to terms with "why him?" "why us?" "how could this be?" and will probably never understand. For him, there is an over 90% CURE rate with his treatment plan at CHOP. Cure - that means he will battle, persevere and win.
As always we thank everyone who has reached out, dropped off, cooked and stopped by. We will be forever grateful for such a wonderful support system ❤ As you can tell Stella missed him something terrible. She now has a part in this journey with us that is more important than ever. Just her presence makes everything better. #powerofparker #lifewithparker #1
