Parker had severe asthma. He missed 35 days of school in Kindergarten. I couldn’t send him in when he was having a flare. His treatments were too frequent and quite frankly, I wouldn’t take my eyes off of him. I didn’t trust that at school things would be ok. With asthma, it could go south in the blink of an eye. This was all new to me, even though I also had asthma, it was on a whole new level. We spent many many nights doing treatments every two hours around the clock. He would sleep with me those nights so I was right there with him. Just like the last night we spent together.
We brought him directly to CHOP for diagnosis and treatment. He was such a trooper. He did all of his treatments and meds like it was just brushing his teeth. It was a part of his routine for years. I would use the clipboard and chart every day, it hung in our bathroom forever. I remember people always asking what the heck that was. This month, 6 years ago, was the first time in I don’t know how long he went 30 days without a flare. I was so excited to have it all under control.
I still have the clipboard and all those months of zeros and checks.
I love you forever, Bud.
